Posted on September 25, 2006
Posted on September 25, 2006
I’ve been noticing a lot of hits to my site from people searching on things like “married to aspie” and sad things like “hate my Aspergers husband”. I feel for the woman that searched on that, because I know a little bit of how she feels. However, I don’t hate my husband. I hate his behavior sometimes, but never him. I love him more than words can express.
The behaviors common for Aspergers can be quite frustrating and taxing for whoever has to deal with them the most. It’s a complex disorder that many people don’t understand. I think it’s also more common than people realize…
I was reading the Aspen website about some of the common behaviors when I decided to blog about it and share my take on the different aspects of Aspergers. By no means is this a complete account, but I hope that others can learn a little bit more about Aspergers by reading this. You may also want to use this as a reference guide when you see me complaining about my husband.
1. Literal interpretation of language.
This one frustrates me the most of all because I am quite vague. People with Aspergers are almost completely incapable of comprehending implied meanings. I’ll say table when I mean counter. I will say bath when I mean shower. Things always come out wrong for some reason… As you can just imagine, this gets quite complicated when being married to an “aspie”. I’ll say, “Want a tuna sandwich?” and he’ll say no because he thinks I am only offering him ONE (1) tuna sandwich and he usually wants at least 2 sandwiches. Stuff like this happens ALL the time and has tried my patience like you wouldn’t believe!
2. Difficulty understanding others’ feelings.
I think this is why other spouses of people with Aspergers come to hate them. It’s hard to remember that it’s not their fault they are like this. It’s even harder to learn how to accept this cold behavior and yet not take it personally. I notice that my husband has trouble understanding why I am crying. He thinks about everything “logically”. If there is no logical reason, in his mind, why I should be crying, he gets very confused. More over, he almost always has no idea how to respond to this. This was one of the hardest things to get used to in our first year of marriage. He is slowly learning, but he has a long way to go. It’s like learning how to walk, for him.
3. Socially and emotionally inappropriate responses.
When you see someone crying, you immediately feel a wave of compassion in your heart, right? You see a little toddler fall down and scrape their knee, and you automatically feel badly for them and want to help them because you know how their little hearts must feel. People with Aspergers don’t have this auto response. This very thing is why “normal” people think that those with Aspergers have cold hearts of stone. It’s hard to step back and realize, it’s not that they don’t care, they just don’t have that auto response that the rest of us have. And this is just one example… I could go on for pages on JUST THIS behavior alone…
4. Marked impairment in the use of multiple nonverbal behaviors.
Things such as eye gaze, facial expression, body posture, and gestures to regulate social interaction are pretty much missing in people with Aspergers. This isn’t a huge problem with my husband, but it has showed up at very inopportune times. I notice this mostly when he’s talking to people he’s just met or people he isn’t comfortable around. You can just tell he doesn’t act….normal. It’s a little hard to explain.
5. Difficulty judging personal space, motor clumsiness.
This is one that annoyed me while we were dating, before I knew anything about Aspergers. He would constantly do things like accidentally hit me upside the head when moving his arm, put his arm around me and pull half of my hair out, stepping on my feet, etc Not that this has changed much, it’s just that now I watch out for him more! It’s an odd kind of clumsiness. He’s rough and really intense sometimes. Because of this, whenever he does anything that requires using tools, he often hurts himself. I have to remind him to do things like slow down, lighten up, and be gentle. This is a constant struggle for him as he doesn’t want to hurt me or hurt himself, or break things… He just can’t help it.
6. Preoccupation with a particular subject to the exclusion of all others.
I think that this one was especially hard during the courtship period in our relationship. He would talk about things that interested him with no regard to whether I actually wanted to hear about it, or was interested in the subject myself. And we’re not talking once in while… This was something that was constant until I finally told him that I couldn’t handle listening to him talk about science another second! He still does, but he knows that I’m probably not listening. You have to think about this one in extremes. He wasn’t just talking about it once in while… Science was ALL he talked about. And it’s almost like he wants to teach me all about it. (see #7) He now realizes that he’s a little narrow minded and is willing to broaden his horizons a bit. It’s one of the things we are working on.
7. Pedantic, formal style of speaking; often called “ little professor”, verbose.
My husband talks like a professor and he’s always informing people. His conversation style tends to lean towards teaching the other person. He is inclined to make conversations informative rather than just “shooting the breeze”. He doesn’t understand the concept of shooting the breeze and small talk. Now some people really don’t like this… like me. I’m quite resistant to advice and someone telling me that what I’m doing is wrong and I should do it such and such way. One of the reasons I am so resistant to it, is because of my past experiences. Another reason, is my husband. People with Aspergers tend to be like insane geniuses. They thirst for information and are constantly filling their minds with little facts, trivia, and information about anything they are interested in. With my husband it’s computers, science, maps, and the news. (see #6)
8. Fascination with maps, globes, and routes.
Another annoying and weird aspect of Aspergers Syndrome is their fixation with maps. My husband loves Google Earth. His father carries around a Magellan GPS tracking/mapping device. We all went for a walk the other day and he had his little Magellan out and was telling us our elevation and how many miles we walked. (It was 2 miles btw).
I don’t yet understand why people with Aspergers have this odd fascination with maps and things, but I think it’s weird. I find it annoying, but it’s such a harmless thing, I rarely complain about it. I have to convince myself to look at it like it’s a hobby instead of an obsession.
9. Extreme difficulty in developing age-appropriate peer relationships.
(e.g. AS children may be more comfortable with adults than with other children). This might shock some of you and other won’t be surprised at all, but my husband has *no* friends. Not one. He doesn’t keep in touch with anyone he went to school with. He never made friends the whole 5 years he was at college. Aspergers is like extreme shyness…squared. It’s a miracle in itself that we are even together considering his level of shyness. I notice this in his brother as well. Once you know them and they are comfortable with you, they open up like little flowers. But ask them to make a phone call, or ask someone they don’t know a question, and they just will-not-do-it. I find this to be a very sad thing for them because I can’t imagine being physically incapable of approaching another person. You would think they would be very lonely… and they are. It’s just not enough to make them overcome the acute resistance to human interaction.
10. Inflexible adherence to routines and perseveration.
Perseveration: a continuation of something (as repetition of a word) usually to an exceptional degree or beyond a desired point. There should be a picture of my husband next to this word, in the dictionary. The two things he says ALL the time, that get quite annoying and repetitious are: “Two seconds flat” and “That doesn’t make any logical sense”. Doesn’t seem too annoying, right? Well, imagine having a 5 minute conversation with someone and hearing one, if not both of those phrases at least twice. Now are you annoyed? Yeah, I thought so.
Is he inflexible? Yes. Very much so. He is comfortable where he is at and he likes things to stay the same. I was just talking to my friend Cindi about this the other day… I’m very ambitious and I have the motivation to back it up. People with Aspergers….don’t. Some are ambitious, but none of them have an once of motivation. I’m lucky because my husband at least has a half an once of motivation. If he didn’t, he never would have gone to college, graduated, got married, etc. The inflexibility is not something that bothers me a great deal now, but I can see it as being a huge problem in the future. I’m just hoping it’s something we can work on now, so that it doesn’t have to be a problem in the future.
11. Sensitivity to the environment, loud noises, food textures, etc.
Some of you may understand this one, especially if you are or have been pregnant. I have a problem with paper towels, napkins, and Styrofoam. I have a really hard time touching them. They are dry and the feeling of them on my fingers is like nails down a chalkboard. My husband gets the same thing, but it’s not just one things that goes up his back. He is sensitive to people laughing loudly, he hates touching food, and he doesn’t like being around a lot of people if he feels like he’s expected to interact with them. And most importantly, the sound of people chewing drives him insane!! All of those things are like nails down a chalkboard for him. I have found this to be true in his father and brother as well. His brother is quite sensitive to certain smells like chemicals.
12. Difficulty with “give and take” of conversation.
People with Aspergers have odd conversation styles. I’m getting so used to it that it’s hard for me to even pick out what exactly is wrong with it. I believe it is quite obvious to others though. They don’t interact in a normal fashion. At first, it’s almost awkward to have a conversation with them… You’re thinking, “What is wrong with them?!” as you are listening to them respond. I find myself asking my husband things like “Did you hear what I said?” because sometimes it’s like they aren’t even having the same conversation you are. It’s difficult to get them ‘on the same page’ so to speak. Interacting with an aspie is an art form to be perfected over a long period of time. It requires patience and an understanding of the disorder.
13. Extreme difficulty reading and/or interpreting social cues.
My husband has no problem reading social cues, but acting on them is hard because they are not “overt” or clear enough to him. He sees that they are there, but he doesn’t want to act on them in fear of responding to something that doesn’t necessarily call for a response. People with Aspergers have a very hard time not taking things literally. Vague implications don’t sit well with him. (see #1) He explains it as getting “canceling emotions” that prevent him from doing anything. It almost like he “clams up” when he falls upon something that doesn’t make “logical sense”. I find this to be difficult in our relationship, because things like body language evade him. If I want something, I have to come right out an say it. If I’m sad, I can’t just sit slump around with a sour face and expect him to know what’s wrong. I actually have to tell him “I’m sad” in order for him to act on it.
14. Speech and language skills impaired.
I find this true especially in the area of semantics, pragmatics, and prosody (volume, intonation, inflection, and rhythm). Sometimes they talk in a monotone manner. My husband doesn’t have a problem with volume, but his father does. His dad is always talking much too loud for human ears to handle.
I find this to be a subtle behavior with Aspergers. It doesn’t bother me and it usually doesn’t hurt my feelings, so I tend to ignore it. I’m getting used to it. It’s more of an odd personality trait then an actual ailment or real issue.
Like I said before, I could go on and on, but I wanted to at least spend a few minutes explaining some of my daily struggles with Asperger behaviors. This is not intended to be a husband bashing fest, as one person mentioned. I am merely trying to share my experiences and opinions on this disorder in the hopes that I might be able to help others.
Please feel free to comment and share your thoughts on the subject.
Posted on August 09, 2006
Image. People today are so worried about their image. Worried about what other people will think about them. Whether it’s the way you dress, the way you fix your hair, or the way you smile and shake someone’s hand, we’re all concerned about our image and the way other people perceive us to be.
We all know people judge. Even we who are being judged are doing the judging. When you meet someone for the first time, you can’t help but scan them up and down and come to a quick conclusion on who you perceive them to be. Sometimes our first conclusions are correct. Most times, they are wrong. So how many people out there are perceiving you to be someone you’re not?
Could it be that no one really sees us as the person we’d like them to see? Could it be that we’re all wasting our time trying to be a certain person, or look a certain way so that people will accept us? And is this something we all learn over time and at one point just stop trying? I had to wonder…
Our culture and society today is all about image. Whether it’s makeup commercials, the airbrushed models on the magazines, or the expensive clothing in the stores, image is constantly shoved in all of our faces. And it’s not just us ‘normal’ people that have to worry about our image. Even the models and actresses worry about the way they look. It’s not necessarily that they are genetically gifted, they just spend more time on their image. Why is it so important how we look? Why is the decay of our self images an epidemic in our society? Why can’t we all just be ourselves and not worry about what other people think?
Posted on July 29, 2006
I have recently realized that my self image affects my relationship with my husband. To most, especially those that are older and wiser than me, this may seem like common knowledge. I had to learn it the hard way yesterday.
And yes, out of a lack of anything else to write about, I am going to go against everything I stand for and talk about my marriage… I might regret this tomorrow!
I woke up from a nightmare, as usual. From those of you that are new to this blog, I have Posttraumatic Stress Disorder. One of the effects of this is, I suffer from nightmares 3-6 days a week. Most are about being kidnapped, being separated from my husband, or having my children taken from me. (I don’t actually have any children though.) Who is doing the kidnapping? The “BP” in my life…
Anyway, I woke up after having a nightmare about not being able to get to my husband and “people” preventing me from seeing him. I felt groggy and couldn’t get the memory of my dream out of my head. It was making me feel very insecure and when I feel insecure, I tend to confuse it with my self-image. In doing this once again, I decided that I would do the one thing that makes me feel better about how I look; putting makeup on.
I went into our bathroom and put on a little light brown eyeshadow, a tiny bit of eyeliner on my bottom lid, and a light colored lip gloss. Very simple, very un-noticeable, but enough to make me feel “dressed up” and put together. I forgot about my dream, felt a bit happier from gussying myself up, and went about my day.
When my husband came back from class the first thing he did was starred at me for a minute with this “look” on his face and then he said, “Why do you have makeup on?”. Now most people would put the accentuation on the word ‘makeup’ but he put the accentuation on the words ‘why’ and ‘on’. Of course to me this translates to “Why the hell did you do that to yourself? What were you thinking of? I hate it!” Yeah, you can all see where this is going…
I tried to remain calm, although I felt like popping him in the nose for even addressing the fact that I had makeup on. I don’t like it when he points things like that out… So I simply said, “I felt like.”
Apparently, to my husband, ‘feeling like it’ is not a legitimate reason to do something. He thinks that I have an underlying intent… a deeper reason of why I felt the need to put the makeup on in the first place. I tried to explain to him that I simple felt like putting makeup on because it was fun and it made me feel pretty. He should have taken it and dropped the subject, but no…
“Why is putting makeup on “fun” for you? It doesn’t make you look pretty, it makes you look worse. I like you better without makeup. You don’t need makeup.”
By this time I am feeling incredibly insecure and ugly. (Yes, I am very sensitive) “I don’t care if you think I look good without makeup. It makes me feel pretty.”
“Why does makeup make you feel pretty?”
“It just does… It makes me feel dressed up and more feminine.”
“But you don’t need makeup and it doesn’t make you look better. In fact, it makes you look worse. I think you look better with no makeup on.”
“Oh so you think dark circles under my eyes, chapped lips, and pimples are hot?”
“No, I just think you look worse with makeup on.”
“Oh! That’s just great! You think I look BAD to begin with and even worse when I put makeup on?! Are you telling me that the one good thing that makes me feel good about myself, makes me look WORSE?!” (Can’t you just hear the tone of my voice at this point…?)
He attempted to dig his way out of the hole he had just created and I attempted not to cry as my self esteem level went soaring down. Needless to say, I ended up crying and washing my face out of embarrassment. And he finally apologized for making me feel worse.
Once again a good example of how ones self-image can affect your relationships.
If I hadn’t been so insecure about how I looked, my husband telling me that I look better without makeup would have made me feel better, not worse. If he had actually said that I looked better without makeup instead of saying that I look worse with makeup, it wouldn’t have made me feel worse than I was already feeling by that time. He’s pretty clueless when it comes to these things… Mostly because of the Asperger’s Syndrome I think. However, please don’t think I am making excusses for him now…
What did I learn from this? To not let other people’s opinion affect how I feel about myself in a negative way. And not to wear makeup during the day when I am only bumming around the house…. or never wear makeup again for the rest of my life……
Posted on June 30, 2006
This week, my BPD support group has been discussing whether Aspies and BPD’s are linked. Personally, I don’t think they are. There is nothing that jumps out at me when looking for a correlation between Aspies and BPD’s.
The literature they have presented indicates that there are aggressive Aspies, but I think this is a manifestation of frustration. Aspies are gentle and kind souls. They have a lower threshold for some things though and just as any normal person would, they have their breaking points. I can see how the combination of being very sensitive and particularly vulnerable to stress and/or abuse could push some of these sweet and often brilliant souls over and into a place that’s not good, especially if they are exposed very young. This in turn could manifest traits and behaviors similar to BPD.
By the time Aspies reach adulthood, most have developed good coping skills and have learned how to read others better and have found niches that work for them, like finding a field that limits the social interaction, etc. The key to diagnosis often comes from looking back over their childhood. However, it seems that it is much harder to detect Asperger’s in girls, for various reasons, but one of them is that the girls appear to figure out and manage the social aspects earlier and better.
As is with any disorder, people will fall into the spectrum to varying degrees. For some, it may be obvious that something isn’t right… for others, it may not be apparent and therefore won’t be investigated unless it’s seriously effecting their lives or those around them.
There are many autism spectrum disorders where it’s been found that what and how they eat greatly effects their moods and coping abilities. They seem to do even less well than “normal” people at managing on a poor diet, especially if it’s high in simple carbs. This rings true for BPD’s as well. It was pointed out to me several months ago that a low carb diet may be a contributing factor on the BP in my life. That is something to think about…
One woman I talked to said that she didn’t think her BP husband had Asperger’s, but that she could see some traits that are similar or parallel. Things like discomfort or avoidance of social situations, difficulty interpreting the emotions of others by facial expressions and body language, imposition of routines and interests on others, etc. She thinks there should be more research to see if they are really related in some way. She pointed out that there have been correlations drawn between ADHD and Tourette’s. And also with bi-polar and BPD. It’s almost like they overlap it seems.
The major difference I see is that people are born with Asperger’s and BPD is something that is developed from childhood or adolescent trauma. Asperger’s can’t be prevented, BPD can!
Asperger’s usually makes for some very brilliant, awesome, sweet and endearing people. These people are not born bad, but they are born different. Although some with the most extreme forms might have a great challenge at being “normal” and having healthy intimate relationships.
Most Aspies, it seems, are very sweet people! (I should know, I married into a family of them!) Although I have heard of Aspies that choose “the dark side” and express behaviors and traits that can easily be confused with BPD. I’m sure there are Aspies that actually have BPD, but I do not think there is a direct link between the two. But that’s just my opinion… Any thoughts?
Posted on December 30, 2005
…it’s compromise that moves us along.
Compromise. The world should definitely have more of it. If we all learned to compromise more for others, imagine how much happier we would be knowing that we made someone else happy? Imagine how much happier they would be and how much more willing they would be to compromise for us?
By compromise, I mean not being stubborn and demanding that we have our own way, even if it makes someone else unhappy. By compromise, I mean letting something go for the benefit of someone else. It’s about being less selfish and self centered. Are we ever willing to sacrifice for the good of another human being? Rarely. In our culture we are too wrapped up in ourselves and our dreams and our desires to stop and thinking about giving.
Sometimes you just need to let go of our own ideas about what is right for others. It may be we want to share our opinions on cars to someone who is going to buy a new vehicle. Now they might be interested in a Ford, but you hates Fords. So you share that opinion with them. What if they still want to get a Ford? Well usually, we assume, well maybe they didn’t really understand our reasoning for not liking Fords, so we tell them again, in a different way. You rant and rant for a while longer, getting stronger in your opinion and stronger in your decision against Fords, but alas, they still want to purchase a Ford. Instead of accepting that they have different likes and dislikes for styles and engines and horsepower than you do, we usually get angry and frustrated and can’t imagine why they aren’t agreeing with us!! So we go at it again….in our brains we are now positive that Fords suck and we are sticking to our guns on it!! God forbid if we back down!!
Why are we like that? Is it our culture? Is it the way we were brought up? Or is it human nature and us striving for individuality?
We need to learn to compromise for others. You don’t have to change your mind and love Ford trucks, but you don’t have to ruin someone else’s day stating your opinion. And I’m just talking about trucks here!! What about when we do that to our kids about the man or woman they are about to marry? How much more ugly do we get about our opinion when we know it’s going to effect and change that person’s life forever? We need to learn how to compromise.
I think as humans, sometimes we take our feelings and opinions and push them too far until and we are playing God in someone else’s life. Whatever happened to peacefully disagreeing? Whatever happened to just dropping the subject altogether when you know you can’t meet in the middle? Just think about how much more amazing and happy our lives would be if we just learned to compromise?
Posted on November 20, 2005
“Love means living the way God commaded us to live.
As you have heard from the beginig, his command is this:
Live a life of love.” 2 John 1:6
Because God is love, the most important lesson he wants you to learn on earth is how to love. It is in loving that we are most like him, so love is the foundation of every command he has given us: ” The whole law is summed up in this one command: ‘love others as you love yourself,’”
Learning to love unselfishly is not an easy task. It runs counter to our self-centered nature. That’s why we’re given a lifetime to learn it. Of course, God wants us to love everyone, but he is particulary concerned that we learn to love others in his family.
Love should be your top priority, primary objective, and greatest ambition. Love is not a *good* part of your life; it’s the *most important* part. The Bible says, “Let love be your greatest aim.”
It’s not enough to say, “ONE of the things I want in life is to be loving,” as if it’s in your top ten list. Relationships must have priority in your life above everything else. Why? Life without love is worthless. Paul makes this point: “No matter what I say, what I believe, and what I do, I’m bankrupt without love.”
Love will last forever. Another reason God tells us to make love our top priority is that it is eternal: “These three things are forever: faith, hope, and love. And the greatest of these is love.”
Love leaves a legacy. How you treated other people, not your wealth or accomplishments, is the most enduring impact you can leave on earth. As Mother Theresa said, “It’s not what you do, but how much love you put into it that matters.” Love is the secret of lasting heritage.
Knowing this, I suggest that when you waKe up every morning you kneel by your bed , or sit on the edge of it, and pray this: “God, whether I get anything else done today, I want to make sure that I spend time loving you and loving other people — because that’s what life is all about. I don’t want to waste this day.” Why should God give you another day if you’re going to waste it?
Time is your most precious gift because you only have a set amount of it. You can make more money, but you can’t make more time. When you give someone your time, you are giving a portion of your life that you’ll never get back. Your time is your life. That is why the greatest gift you can give someone is your time.
It is not enough to *say* relationships are important; we must prove it by investing time in them, Words alone are worthless.
The essence if love is not what we think or do or provide for others, but how much we give of ourselves.
The most desired goft of love is not diamonds or roses or chocolate. it is focused attention. Love concentrates so intently on another that you forget yourse;f at that moment, Attention says, “I value you enough to give you my most precious asset—my time.” Whenever you give your time, you are making a sacrifice, and sacrifice is the essence of love. Jesus modeled this: “Be full of love for others, following the example if Christ who loved you and gave himself to God as a sacrifice to take away your sins.
The best use of life is love. The best expression of love is time. The best time to show love is now.
Posted on October 03, 2005
You know, I never thought about it this way before, but civilian gossip is the same as celebrity gossip.
I mean, we always hear tons of gossip (untrue or not) from Hollywood, and the only reason why that gossip is out there for all of us to hear is because the people the gossip is about are famous!
How is that gossip really any different than the gossip we hear about our friends?
I’m not sure how to explain this really, but it pertains to my situation.
After being accused of having Alzheimer’s, Elizabeth Taylor denied it and said, “Tabloids report such things because they have nothing else dirty to write about anybody else.”
Does that not pertain to our life as well? If someone is talking about you behind your back or gossiping about you, isn’t it just because they are thinking about you? If they were thinking about somebody else, they would be talking about somebody else.
So really, if you think about it in a weird way, if someone is gossiping about you, you could actually be flattered by that.
In a weird, twisted way, it means they care about you enough to be thinking about you all the time. Regardless of whether that’s in a negative way or not, is not the point. Yes gossip is usually harmful and mean and nobody likes to be talked about behind their back! But what I am trying to express is that if someone is gossiping about you, even if they say they don’t care about you, they really DO. Otherwise, they’d be talking about somebody else…